Supporting families through the NICU experience and their transition home.
The Wellness Network’s Your NICU Baby Neonatal library provides up-to-date video and print patient education that help families successfully navigate the NICU experience and transition home.
These guideline-compliant educational resources help parents and extended family members understand procedures, protocols, medical conditions, and infant care so they can better adapt to baby’s NICU stay and prepare for taking care of baby once they head home.
Resources were developed to help families understand procedures and protocols, medical conditions, infant care, and transitioning home. Personal stories and insights shared by experts and NICU families help ensure the best outcomes for both baby and family. This comprehensive neonatal library includes videos and PDF resources by The Wellness Network and Preemie Parent Alliance. Topics include:
- Coping & Emotions
- Family Support
- Navigating the NICU
- Going Home
- Medical Conditions
- Neonatal Development
- Tests & Treatments
- Premature Newborn
Multiplatform delivery tools enhance the reach and efficiency of these resources through easy accessibility when and where it is needed most, while EMR integration supports assignment and tracking of education within staff workflow.
What NICU Parents Want:
- Family-centered care: It’s a standard of practice in NICUs.
- Adequate preparation for the transition home: Only 37% of parents surveyed felt that they received it.
- Access to information for patients and extended family members: This is primarily provided to parents verbally (86%), but also via brochures (65%) and handouts (59%).
- Opportunity for more hands-on experience, practice, and preparation: 1 in 5 parents expressed a desire for this.
This neonatal library supports Family-Centered Developmental Care (FCDC):
- Informs families about NICU procedures and equipment in understandable language.
- Promotes understanding of NICU environment to ensure informed participation by families in their baby’s care.
- Explains NICU staff roles to enhance family trust and confidence.
- Reassures families of shared goals for baby’s optimal outcome.
Our partnering organizations are trusted by parents, families, and professionals in the NICU environment.
Here’s what NICU parents are saying:
“These NICU programs give more positive and accurate information than
searching on Google.”
“Watching the NICU family stories gave me a sense of relief that there are other
people going through my struggles.”
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NICU Blog Posts
- Supporting Families and Staff with Palliative and Bereavement Care in NICU, Sue L. Hall, MD
- Staff Education and Support for the NICU, Sue L. Hall, MD
- Parent Led Peer to Peer Support Organizations NICU Families, Sue L. Hall, MD
- Promoting Comprehensive Family Support of NICU Families to Hospital Administration, Sue L. Hall, MD
- Family Centered Developmental Care, Sue L. Hall, MD
- SIDS and Ensuring Safe Sleep, Sue L. Hall, MD